Sunny Day, Sweepin' the clooooouds away. On my way to where the air is sweet...
Remember that song? I had it stuck in my head yesterday, and find that I'm still humming it today. Day 7 of feeling good! Better anyway... I believe one of two things are taking place - 1) I'm in a 3-4 week cycle of 1 week good, 2 weeks iffy, and 1 week bad, or 2) I'm finally on the mend and catching back up, post Paris trip. Who knows..the adventure does not end!
Lots of inquiries about the medicine, and if we're noticing any benefits yet. I will say 'no' not yet, but again, we do not expect anything, for 3-4 months. I do notice upset belly more regularly though :) ...I know its in my system...
I'm feeling good, have a huge appetite, and my eyes are calming down! Its awesome to be able to breathe with ease again, and to sleep through the night after a good month or two of getting up 2-3 times a night. My body continues to fight a little bit, but its tolerable.
So today is a sunny day, and the clouds are definitely being swept away. We'll savor every moment and take it for what it is; the "right here, right now". Savor yours too!
skip to main |
skip to sidebar
Smile because you can!
Life is such an amazing adventure! One day you're cruising along with certain expectations, a planned route, and plenty of gas in the tank. The next, you're not sure where you are on the map and your compass fell beind that comfy seat you were in.
Smile because you can!
About Me
- Rachel
- Austin, TX
- My name is Rachel, and I have a neuromuscular disease called Myasthenia Gravis. This crazy condition was bestowed upon me in late 2008, and has the ability to render your body weak and sometimes useless unless proper treatments are administered. I've learned so much, and I feel blessed I am able to share. I'm nervous to write, but have learned that I should. Maybe you'll take something away from my nonsense.