I'm afraid to go to sleep. There, I said it.
Over the past few days, I've been able to eat, but my body fatigue has increased, and the 100 degree weather here, doesn't help. Now, at night while trying to sleep, my mouth will fall open. This is the MG at work..or not working as the case would be. Since the muscles are vacationing, my jaw will drop, then the mouth breathing begins, followed by dried mouth and throat and then shock and you're awake. I would venture to say this happens to everyone when you have a sinus infection or head cold, and you can't breath through your nose well. Same idea. Its midnight my time, and I need to sleep, but I dont want to be woken again, due to the startle.
Yes, I've tried taping my mouth shut. Its ok, I laughed too! I wear an eye mask at night for the same reasons, my eye lids dont close all the way (scared my sis with this once upon a time), so the mask helps keep the lids down and the light out. The combination of taped mouth and secure eyes, actually made me a bit claustrophobic ..so I can say I'll hold off on that trick for now.
Ug...I'm ready for symptoms to take a break...and I need to rest to help do this...so, I'll give 'er a go. Nap time.
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Smile because you can!
Life is such an amazing adventure! One day you're cruising along with certain expectations, a planned route, and plenty of gas in the tank. The next, you're not sure where you are on the map and your compass fell beind that comfy seat you were in.
Smile because you can!
About Me
- Rachel
- Austin, TX
- My name is Rachel, and I have a neuromuscular disease called Myasthenia Gravis. This crazy condition was bestowed upon me in late 2008, and has the ability to render your body weak and sometimes useless unless proper treatments are administered. I've learned so much, and I feel blessed I am able to share. I'm nervous to write, but have learned that I should. Maybe you'll take something away from my nonsense.