Well, we've been roughly a month and a half without tape on the glasses. How awesome! ..and this is the second week, that we're trying only 2 pheresis treatments, rather than 3 a week. For the most part, I feel like we're getting by...but...
My back has been fighting me for the past few days, with tightness and spasms. This week is also the week that my body is under natural stress. (Was that dainty?) With all of this, I can feel my swallow becoming more difficult and my eyes want to fight too. Ug. This is what we've expected, and I consider this week my test. If we can survive the week without double vision, and can continue to rest the symptoms away, then we're really making progress!
We'll head back to Dallas for a follow up with the MuSK MG Dr. in a couple of weeks, and expect that we'll increase the dosage again, which i think will help more. My hope/goal...we make it to 1 treatment per week, by year's end.
Time to rest the eyeballs...
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Smile because you can!
Life is such an amazing adventure! One day you're cruising along with certain expectations, a planned route, and plenty of gas in the tank. The next, you're not sure where you are on the map and your compass fell beind that comfy seat you were in.
Smile because you can!
About Me
- Rachel
- Austin, TX
- My name is Rachel, and I have a neuromuscular disease called Myasthenia Gravis. This crazy condition was bestowed upon me in late 2008, and has the ability to render your body weak and sometimes useless unless proper treatments are administered. I've learned so much, and I feel blessed I am able to share. I'm nervous to write, but have learned that I should. Maybe you'll take something away from my nonsense.