Day 40 and 10 days. Hummm....what's she doing now? Another number?
I'm sitting on the couch right now, with the porch door open. Its overcast and cool this morning, and the birds are on fire! Ok, not a blaze, but they are chirping up a storm. I just watered the Topsy Turvey tomato planter and can hear the water dripping into to the metal catch pan we placed below it. Sounds like rain on a tin roof. Such peace and so much gratitude.
It has been 10 days since my last plasmapheresis treatment!! It really is amazing that i went from being so very dependent upon these treatments, to now beginning to think about when may be the right time to remove catheter #4. God is good!
For the past week, I find myself feeling like a kid out for spring break. Yay, class is out, and we get to goof off for a few months. Maybe the reprieve is short lived. Maybe we are preparing to graduate class all together. Who knows whats going on just yet, but I'm enjoying myself during the break. Perhaps I'm a little nervous to think this part of the journey is approaching. What's next?
Sitting here chatting with you, I know in my core that whatever comes up next, its crucial to remember where we've been, what the emotions are, how we deal with given obstacles, and to be able to relate this to others or to reapply the lessons we've learned. Whatever is next, we'll be ready. Cant wait and worry. Well, we can, but choose not to. Besides, today is day 40, and the birds are chirping. Its a good day!
Saturday, March 26, 2011
Sunday, March 13, 2011
Number crunching
Rally the numbers. We are a numbers driven society, so lets look at a few data points:
Last night, we wound the clocks ahead 1 hour and have lost an hour of sleep. Arg! ...but thank you God for the sleep given and for waking on the topside of the grass (as Daddy would say). ...ok...no more griping :)
It has been 3 weeks since Lee and I married (wahoo!), and yes, we’re still smiling and enjoy calling each other ‘husband’ and ‘wife’. Honeymoon planning in the works. We’re awesome!
It has been 2 weeks since our Myasthenia Gravis support group (Team MG) walked in the Austin MDA (Muscle Dystrophy Association) 2011 Muscle Walk event. Team MG raised over $4,400 for MG research, and the event collectively raised over $93,000 for MDA research. Wow! This was almost 3x monies raised last year, and attendance was doubled!
Drum roll please….bada, bada, bada, bada…..For the past 2 weeks, my body has tolerated doing only 2 treatments a week. This is down from 3. This is different. This is new. It has been a year since I was able to successfully function, with only 2 plasma treatments in a week. ..and I AM FUNCTIONING WELL! (Your prayers are felt!!!!)
Eleven (11) days ago, we added steroids to my daily medicine regime. It is a low dosage, and something we’ve fought for a while. Crazy enough, I do not feel the ‘roids have motivated the lesser treatments. I started feeling better before the wedding and with the exception of the 4 days or so of symptoms, I have maintained this stability for the past…what…70days? …Since the blood clots in December…? Heck, you’ve been with me! You know! None the less, we’ll remain on them for now, and hope to drop them soon.
Day 26 or so! Yes sir, I’m still counting. Why not? What else is there? Work? Task? Groceries? Schedules? Bills? Crazy? Yeah, that’s all very real and part of my world too, but it really is minimal when I consider how the stress levels related to each of these ‘things’ really can drive my health. Daily peace, calm, prayer, priorities...real priorities...clarity. You really can make a difference in your day.
Day 26, it’s a good day!
Last night, we wound the clocks ahead 1 hour and have lost an hour of sleep. Arg! ...but thank you God for the sleep given and for waking on the topside of the grass (as Daddy would say). ...ok...no more griping :)
It has been 3 weeks since Lee and I married (wahoo!), and yes, we’re still smiling and enjoy calling each other ‘husband’ and ‘wife’. Honeymoon planning in the works. We’re awesome!
It has been 2 weeks since our Myasthenia Gravis support group (Team MG) walked in the Austin MDA (Muscle Dystrophy Association) 2011 Muscle Walk event. Team MG raised over $4,400 for MG research, and the event collectively raised over $93,000 for MDA research. Wow! This was almost 3x monies raised last year, and attendance was doubled!
Drum roll please….bada, bada, bada, bada…..For the past 2 weeks, my body has tolerated doing only 2 treatments a week. This is down from 3. This is different. This is new. It has been a year since I was able to successfully function, with only 2 plasma treatments in a week. ..and I AM FUNCTIONING WELL! (Your prayers are felt!!!!)
Eleven (11) days ago, we added steroids to my daily medicine regime. It is a low dosage, and something we’ve fought for a while. Crazy enough, I do not feel the ‘roids have motivated the lesser treatments. I started feeling better before the wedding and with the exception of the 4 days or so of symptoms, I have maintained this stability for the past…what…70days? …Since the blood clots in December…? Heck, you’ve been with me! You know! None the less, we’ll remain on them for now, and hope to drop them soon.
Day 26 or so! Yes sir, I’m still counting. Why not? What else is there? Work? Task? Groceries? Schedules? Bills? Crazy? Yeah, that’s all very real and part of my world too, but it really is minimal when I consider how the stress levels related to each of these ‘things’ really can drive my health. Daily peace, calm, prayer, priorities...real priorities...clarity. You really can make a difference in your day.
Day 26, it’s a good day!
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