Rally the numbers. We are a numbers driven society, so lets look at a few data points:
Last night, we wound the clocks ahead 1 hour and have lost an hour of sleep. Arg! ...but thank you God for the sleep given and for waking on the topside of the grass (as Daddy would say). ...ok...no more griping :)
It has been 3 weeks since Lee and I married (wahoo!), and yes, we’re still smiling and enjoy calling each other ‘husband’ and ‘wife’. Honeymoon planning in the works. We’re awesome!
It has been 2 weeks since our Myasthenia Gravis support group (Team MG) walked in the Austin MDA (Muscle Dystrophy Association) 2011 Muscle Walk event. Team MG raised over $4,400 for MG research, and the event collectively raised over $93,000 for MDA research. Wow! This was almost 3x monies raised last year, and attendance was doubled!
Drum roll please….bada, bada, bada, bada…..For the past 2 weeks, my body has tolerated doing only 2 treatments a week. This is down from 3. This is different. This is new. It has been a year since I was able to successfully function, with only 2 plasma treatments in a week. ..and I AM FUNCTIONING WELL! (Your prayers are felt!!!!)
Eleven (11) days ago, we added steroids to my daily medicine regime. It is a low dosage, and something we’ve fought for a while. Crazy enough, I do not feel the ‘roids have motivated the lesser treatments. I started feeling better before the wedding and with the exception of the 4 days or so of symptoms, I have maintained this stability for the past…what…70days? …Since the blood clots in December…? Heck, you’ve been with me! You know! None the less, we’ll remain on them for now, and hope to drop them soon.
Day 26 or so! Yes sir, I’m still counting. Why not? What else is there? Work? Task? Groceries? Schedules? Bills? Crazy? Yeah, that’s all very real and part of my world too, but it really is minimal when I consider how the stress levels related to each of these ‘things’ really can drive my health. Daily peace, calm, prayer, priorities...real priorities...clarity. You really can make a difference in your day.
Day 26, it’s a good day!
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Smile because you can!
Life is such an amazing adventure! One day you're cruising along with certain expectations, a planned route, and plenty of gas in the tank. The next, you're not sure where you are on the map and your compass fell beind that comfy seat you were in.
Smile because you can!
About Me
- Rachel
- Austin, TX
- My name is Rachel, and I have a neuromuscular disease called Myasthenia Gravis. This crazy condition was bestowed upon me in late 2008, and has the ability to render your body weak and sometimes useless unless proper treatments are administered. I've learned so much, and I feel blessed I am able to share. I'm nervous to write, but have learned that I should. Maybe you'll take something away from my nonsense.