Today, I could feel my face!! For the first time in a while, I woke up able to feel my face again. Not in the sense that you put your hand to your face, and it feels smooth, or bumpy, or cold, or smiley. Feel my face in the sense that it did not feel numb-ish from the inside. I could smile and feel my cheeks and the muscles that help make that happen. It didn't feel like a Dentist loaded me up with that lovely 'stuff' that dulls the hurt. I could feel my face! Now, as I type, its late in the day, and the sensation has diminished. Baby steps!
We continue to slowly decrease the Prednisone and with that, I suppose the side effects will slowly go away too. All I've heard people say is that the side effects from this medication (long term use), is 'just horrible'. Then I ask, 'what does that mean' and often do not get a clear answer. So, I'm here to share.
Your joints start to hurt. I brace myself at times, when sitting. No, you re not getting old and falling apart..well..not exactly. You're not expediting the aging process, but your body *is* expediting the joint degradation. Gotta keep exercising!
My appetite is great..and so is my waistline. NO, that's not a cry for help or a woe is me. Its more like a 'Whoooah' for me!
My vision gets blurry. Aside from any allergens that may be blowing through the area, the vision field gets blurry at times and you have to stop and blink, blink, blink or I even try the eye drops. Sometimes it helps, but most of the time, ya just deal with the change.
Your skin gets a bit aggravated too. What does that mean? I mean, there are little bumps all over that you would liken to dry skin or maybe hives or shingles...it looks that way. I have a lovely break out on my face, and it acts nothing like the silly 'zits' we all grew up with. They're just annoying and ugly.
Ok, that's my quick tutorial on the side effects of Prednisone. Those that I have experienced! Don't get me wrong, these are necessary hurdles and very minimal, when compared to the alternatives patients are often faced with.
Today marks 10-weeks with out pheresis, 11-weeks since the last infusion, let's call it 12-weeks since the symptoms were present, and this morning I could feel my face!
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Smile because you can!
Life is such an amazing adventure! One day you're cruising along with certain expectations, a planned route, and plenty of gas in the tank. The next, you're not sure where you are on the map and your compass fell beind that comfy seat you were in.
Smile because you can!
About Me
- Rachel
- Austin, TX
- My name is Rachel, and I have a neuromuscular disease called Myasthenia Gravis. This crazy condition was bestowed upon me in late 2008, and has the ability to render your body weak and sometimes useless unless proper treatments are administered. I've learned so much, and I feel blessed I am able to share. I'm nervous to write, but have learned that I should. Maybe you'll take something away from my nonsense.