return of the oooozzzzeeee

I woke up this morning, ready to take on the day (thanks Dr. Laura)! First things first, the shower to wake up. Today is a 'dressing change' day for me. I wash the catheter site and change the dressing, every other day. This morning, I removed the gauze to see green ooze. Dang the ooze!

Just like a science experiment, I carried my 'findings' into treatment this morning, and showed off the ooze. We dripped some antibiotic right after treatment, and then will start on pills too. This is the first siting of ooze, and I'm not scared of it...but I know to report it now, and not try and 'mentally fight it'.

Thursday is the day we meet with Dr. Wolfe in Dallas. He is another neurologist, but studies and test quite a bit, with Myasthenia Gravis. From what I'm told, I expect we will be in a one-on-one meeting with him, rather than sitting in a room full of residents like a show and tell exercise (let's leave that for the ooze). We meet with him at 8am, and do more electromagasomethingoranother that afternoon, as a 'standard' part of the visit. This is where they insert a short needle (sewing needle size) into various areas of my head and body, to measure signals from my nerves and muscles. Atleast it's not a spinal tap or feeding tube...this is tolerable.

So, prayers up! Praying hard over this catheter, that we do not become infected. Prayer super duper hard for Dr. Wolfe and trusting that the 'right' thing will come from this visit. I know what I want to come from it, but know better than to try and force that into reality.

We'll report in!
*muuuuuuuah*
Rach