All is (still) well! I'm very tired this week, but that's fairly common.
For the guys, this may be too much info, so close your eyes.
For the gals, you'll appreciate this fact. Most women report exacerbated symptoms for this disease (and many others), during the week their cycle starts. Turns out mother nature really does stress the body out a bit, or the hormonal shift has an impact on our ability to tolerate. The guys who read along with us, are now smiling and nodding. Yes, I know you men have known this fact about females since the dawn of time...and we choose to believe we are only difficult...ahem...different minded, when it suits us. ;)
Men, you can uncover your eyes now. So, thank God, this week is another good week. Aside from greater fatigue and a weakened pallet at day's end, I feel good and remain steady on the MG med (Prograf), maintain the pheresis schedule (3x week), and look forward to our follow up visit with MG Dr at month's end. Sleep really does appear to help!
We're also on day 5 of the new MS medication (Copaxone). This *nifty* little medication is administered through a needle. Yeppers, daily injections. Its not bad...well not that bad. I think this is where I am now grateful for the many bee stings or ant bites I must have had as a kid. I know the sensation, and know it goes away.
This week's excitement is that my parents and Aunt Al come to visit this weekend, so we're looking forward to a laid back, restful visit. Especially after a visit to the Salt Lick BBQ...I see many naps on the horizon...
Even thought I can't see you there, thanks for reading along... xo
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Smile because you can!
Life is such an amazing adventure! One day you're cruising along with certain expectations, a planned route, and plenty of gas in the tank. The next, you're not sure where you are on the map and your compass fell beind that comfy seat you were in.
Smile because you can!
About Me
- Rachel
- Austin, TX
- My name is Rachel, and I have a neuromuscular disease called Myasthenia Gravis. This crazy condition was bestowed upon me in late 2008, and has the ability to render your body weak and sometimes useless unless proper treatments are administered. I've learned so much, and I feel blessed I am able to share. I'm nervous to write, but have learned that I should. Maybe you'll take something away from my nonsense.