Coffee Talk

Happy Sunday to you! I'm sitting in the church parking lot for just a bit longer, before going in to help with set up. I really enjoy my role with the hospitality team, because my tasks are focused on preparing the coffee and donuts. Um, YUM! When I started to visit Gateway (on my own), the coffee/donut station, was my safety net. The place I could go and quietly observe the natives in their natural habitat. Well, I should say the coffee calmed me and allowed me to become a bit more comfy with my surroundings. Anyway, its almost 'go' time, but before I do, this is my time with you!

I find myself more chatty on Sunday mornings just before church. We arrive early, and while Lee is building up the stage and such, I hang out in the car and wait to see the sunrise. No sunrise this AM. :( Of course it rose and is shining somewhere, just not in south Austin. Lots of cloud cover. The birds love it though. They've been yelling at each other since we arrived.

It has been a good week! After 3 weeks off pheresis, I did go in for a 'tune up' this past Wednesday. Of all the weeks, this was the week my body was taxed most (again with the TMI topics), and the symptoms started to show up. Slowed swallow, speech was altering, eye muscles were starting to fight me. Rather than letting the symptoms build up, pheresis was a great alternative. Glad catheter #4 is still around. I was mentally debating, "increase steroids and try to avoid pheresis, or get the pheresis and leave steroids alone?" As if it was really mine to determine, but after speaking with my Doc and letting him know a treatment was scheduled, he said to leave the 'roids as they are. Good deal!

All that said, the past 2 weeks have helped me to remember that yes in fact, I do still have Myasthenia Gravis (MG). It doesn't go away, but it can remain quiet in your system at times. Many people experience this remission period, either naturally or via medicine. At this point, I'm neither, but getting closer to a medicine managed remission. Or so I hope.... The past month has been a complete blessing! The improvement has really allowed Lee and I start thinking about places we want to go, things we want to do, and by golly, plan our honeymoon! We're now in a place where our life doesn't have to be focused on MG, but instead can be built around it. It feels good!

Its time to make the donuts - Let your day be blessed!