Day 12! "OH MY GOODNESS WITH THE COUNTING, Rachel"!! Its just something to pass the time, really. None the less, almost 2 weeks without symptoms. I am so grateful for the person/team/man/woman/whomever, who invented the wonderful catheter contraption in my chest. Truly it is amazing, and after the installation 2 weeks ago, and the pheresis treatment on the same day, I was back to normal. Well, what is normal?
Per my Dr. orders, 6 pheresis treatments have been ordered and we've completed 5 of these. The last one we'll spin tomorrow. What's next? I dont know. We dont know if the ramp u in symptoms over the 3 week time span was simply a Myasthenia flare up which I couldn't get past(the heat here is nuts!), or if I really had been was noticing benefits from the immunosuppresant that we are no longer taking (I go back and forth on this). Either way, that was then, here I am now on steroids, upright and on the topside of the grass, sipping coffee! YAY me!
In the meantime, football is ramping up which equals happiness for me. I think I equate football to cool weather, and thus my joy (Go Broncos!). September holds 2 trips for Lee and I. We'll visit with friends in Telluride, CO and then Maine for our long awaited honeymoon ...awwww...lovie!!! Life is good, and we try to soak it up one day at a time. What does tomorrow hold? Who knows? ..well, i know who knows, and by golly, so long as HE's in charge, I'll just not worry.