Well well well, what do we have here? Its the need for another permacath, eh? Yes, sir. Its go time.
Over the past few weeks, my symptoms have been building up. Today, my neck is fighting to hold the noggin up, my breathing is labored and my speech is failing. As we've said, had we not been here, this would be very scary. But we have, and the most immediate thing we can do is plasmapheresis, which of course means installing a new permacath. So, we're at the hospital now...where everybody knows your name!
Thank you God for the amazing support from those who will be helping today, most directly fight this stupid disease. Thank you as well for those who cheer us on and lift us up to YOU in prayer.
Cath #5, you ready? Lessgo!
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Smile because you can!
Life is such an amazing adventure! One day you're cruising along with certain expectations, a planned route, and plenty of gas in the tank. The next, you're not sure where you are on the map and your compass fell beind that comfy seat you were in.
Smile because you can!
About Me
- Rachel
- Austin, TX
- My name is Rachel, and I have a neuromuscular disease called Myasthenia Gravis. This crazy condition was bestowed upon me in late 2008, and has the ability to render your body weak and sometimes useless unless proper treatments are administered. I've learned so much, and I feel blessed I am able to share. I'm nervous to write, but have learned that I should. Maybe you'll take something away from my nonsense.