Ok, I'm done rolling around in my 'woe me' cave...time to crawl out and soak up the sun again.
Monday was rough, and Tuesday much better. Today, I'm aiming for 90%! Pheresis time again, and this time, my pressure and heart rate are normal...well, normal for me. Vision is returning to normal, speech is close to where it should be, and swallowing isn't far behind. Geezz... I have to own this episode, because I didn't respect the disease.
Its so easy to get wrapped up in ourselves and forget that we don't control everything. Maybe I can control which breakfast taco I eat today, but I'm not controlling how that taco nourishes my body or the energy it gives me to deal with pheresis. I can't control MG, that's for certain. Respect the disease. Respect the lack of control, and respect the decisions you DO get to make. I should have rested, I should have taken a second treatment, I should have used the restroom before sitting down in this chair for an hour. :)
Four bottles of Albumin down, 1 to go. So, in this short time, I'll say today is a good day. I'm not laid up in a hospital bed, like those next to me. My vision is primarily single today. The breakfast taco didn't choke me and the orange juice taste good. Today is a good day.
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Smile because you can!
Life is such an amazing adventure! One day you're cruising along with certain expectations, a planned route, and plenty of gas in the tank. The next, you're not sure where you are on the map and your compass fell beind that comfy seat you were in.
Smile because you can!
About Me
- Rachel
- Austin, TX
- My name is Rachel, and I have a neuromuscular disease called Myasthenia Gravis. This crazy condition was bestowed upon me in late 2008, and has the ability to render your body weak and sometimes useless unless proper treatments are administered. I've learned so much, and I feel blessed I am able to share. I'm nervous to write, but have learned that I should. Maybe you'll take something away from my nonsense.