Happy 1-week birthday pemacath #3! You're doing a great job, and I hope you continue to hang in there. (haha, I crack me up) It seems like a much more distant event, but it has only been a bit more than a week since permacath #2 was removed, and #3 went in. The body soreness from this installation, has passed, and now we are in the 'get to know you phase.' I'm learning how far I can and can't roll over at night, or how to wear the seat belt now, as a passenger. Even more fun, how to position the catheter in my bra so that it isn't poking out, looking funny!
In the mean time, this is week 3 of the 'step down from Cellcept' effort. So far, so good! This will take 6 weeks, and after week 1, I thought I'd noticed increased symptoms. That indicated to me, that the Cellcept was working after all. We all felt is was NOT impacting me as hoped. As it turns out, now 2 weeks later, I've been feeling stronger than usual between treatments. Who knows what that's due to...maybe good rest. Or, it could be because permacath #2 is out, and the antibiotics are over. I've learned you just have to wait and see sometimes...its not mine to figure out...today. Tomorrow however, might just be the day!
Until that day, when we do figure this craziness out, I continue to lift my hands and say 'thank you' for blessing me with the ability to now praise YOU through new eyes...even though they are sometimes crossed...hehe
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Smile because you can!
Life is such an amazing adventure! One day you're cruising along with certain expectations, a planned route, and plenty of gas in the tank. The next, you're not sure where you are on the map and your compass fell beind that comfy seat you were in.
Smile because you can!
About Me
- Rachel
- Austin, TX
- My name is Rachel, and I have a neuromuscular disease called Myasthenia Gravis. This crazy condition was bestowed upon me in late 2008, and has the ability to render your body weak and sometimes useless unless proper treatments are administered. I've learned so much, and I feel blessed I am able to share. I'm nervous to write, but have learned that I should. Maybe you'll take something away from my nonsense.