Today is Thursday, and I'm tired. We have a large global event at work this week, and our department is responsible for hosting and all the details that come with this. My role is minor, but I'm still tired. Those in charge...they're sleep walking through the pain right now! (heart you!) Anywho...because of the crazy schedule this week, I opted to skip my pheresis treatment tomorrow. I've been having treatments twice a week now, since November. It has only been in the past few weeks that I've noticed my strength improving, between treatments. Yay!
As curious as this disease is, the variables that impact it's progressiveness, are equally as stunning. In the past few weeks, the only things to change for me have been the removal of a catheter and reinstall, tapering off of the Cellcept gradually, and completing the antibiotics. Maybe the infection was hampering my ability to maintain from week to week...who knows.
So, if all maintains as it has and I'm able to make it until Tuesday without issues, then I may be back to a weekly treatment schedule! Yeah baby!! ..its the little things that make me giddy, and encourage me to keep on shining! (my verse - John 11:4)
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Smile because you can!
Life is such an amazing adventure! One day you're cruising along with certain expectations, a planned route, and plenty of gas in the tank. The next, you're not sure where you are on the map and your compass fell beind that comfy seat you were in.
Smile because you can!
About Me
- Rachel
- Austin, TX
- My name is Rachel, and I have a neuromuscular disease called Myasthenia Gravis. This crazy condition was bestowed upon me in late 2008, and has the ability to render your body weak and sometimes useless unless proper treatments are administered. I've learned so much, and I feel blessed I am able to share. I'm nervous to write, but have learned that I should. Maybe you'll take something away from my nonsense.