Happy Labor Day all! I hope you were able to rest from all regular labor today.
We've had an interesting weekend. As I mentioned to you in my last post, I'm feeling good! August was nasty, but September is starting off most fabulously! Fabulous, but interesting. This past Friday, I had my regular treatment. Went well, no issues. Made it back to work, then off to lunch. While at lunch, the call came in, "Rachel, you need to come back to the hospital and need to check in".
Now, if you've heard my stories, I often make Doctors, Nurses and Techs aware that if there is a small chance of anything happening, being odd, or going slightly wrong, it will happen with me. I will make sure they earn their tuition! Friday, they called me into the hospital because my blood was wildly infected with bacteria. In most cases, to test for bacteria, you need to draw blood for cultures and then see if anything grows. In my case, there was so many critters running around my blood, the tech could clearly see the bacteria under the microscope.
After checking at the hospital for my mani/pedi (If I keep saying it, maybe they'll make that happen), and finding my room, the Doctors begin streaming. Three came by to tell me I'm odd. Duh!!!! Most impressive was the Infectious Disease Doc who was very confused as to why I was feeling and looking so well. My point was that August was horrible, and this was my first week of single vision in some time. Why wouldn't I feel good? He explained how messed up my blood was and that I should be feeling like I did a year+ ago, when my blood became sepsis.
All that said, we're still in the hospital and have yet to know exactly what kind of koodies I have. It is staph, and is all over, we just dont know which kind specifically. Blah, blah, blah...boring.
We busted outta here today for a few hours, to help out with the Austin Muscular Dystrophy Association's Labor Day Telethon. So much fun, and yours truly was even on TV. Lee and I both were! After our time away (thank you Doctors), we've returned to the hospital and are now relaxing again. What a good day..and I'm still feeling good!
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Smile because you can!
Life is such an amazing adventure! One day you're cruising along with certain expectations, a planned route, and plenty of gas in the tank. The next, you're not sure where you are on the map and your compass fell beind that comfy seat you were in.
Smile because you can!
About Me
- Rachel
- Austin, TX
- My name is Rachel, and I have a neuromuscular disease called Myasthenia Gravis. This crazy condition was bestowed upon me in late 2008, and has the ability to render your body weak and sometimes useless unless proper treatments are administered. I've learned so much, and I feel blessed I am able to share. I'm nervous to write, but have learned that I should. Maybe you'll take something away from my nonsense.