Today is day 2 of no tape..this go 'round. We had a great trip to Denver this past weekend, and saw many friends. The weather was perfect, with a chill in the air! I rested along the way. Yay Rach! My vision was double the entire trip, but at least I could speak and eat without much issue. Yay eating! Treatment on Monday and today was very helpful.
Tomorrow, Lee and I will meet with the MS Doctor, for the first time. He offices with our MG Doc. One big happy family! Turns out they have one other MS/MG patient. I can't tell how crazy these odds are. We should learn more about what type of MS this appears to be, what treatment options/drugs are available, and what next steps are recommended. My expectation is that we will have a informative first meeting, and then we'll have time to consider the options and follow up with MS Doc regarding our choice. Who knows what tomorrow holds...we'll see!
My brother-in-law (my bro) Chris, is taking part in the Augusta Ironman this Sunday! I'm so excited for this and honored that through this event, Chris has elected to raise money for the MDA's Myasthenia Gravis research efforts. Chris, I love ya man!
https://www.joinmda.org/MyEvent/MyHomepage/tabid/174640/Participant/cmaume/Default.aspx
I mentioned earlier in the month, that we helped out with the Austin MDA telethon! It was great and our video package was well received. If you're bored, check this link out too.
http://vimeo.com/14990282
Other than slightly slow speech, all is well today! I can see straight, eat without much issue, speak fairly well (co workers love this) and have my strength. Thank you God, today is a good day. Now, lets go eat
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Smile because you can!
Life is such an amazing adventure! One day you're cruising along with certain expectations, a planned route, and plenty of gas in the tank. The next, you're not sure where you are on the map and your compass fell beind that comfy seat you were in.
Smile because you can!
About Me
- Rachel
- Austin, TX
- My name is Rachel, and I have a neuromuscular disease called Myasthenia Gravis. This crazy condition was bestowed upon me in late 2008, and has the ability to render your body weak and sometimes useless unless proper treatments are administered. I've learned so much, and I feel blessed I am able to share. I'm nervous to write, but have learned that I should. Maybe you'll take something away from my nonsense.