What day is this? Where am I? Seriously, it feels like the past 2 weeks have been some sort of bad episode of Dallas.
In our last episode, After fighting Myasthenia Gravis symptoms for a month, Rachel was finally experiencing relief and felt good. Early in the week of relief, her doctors broke the news, "Rachel also has MS". (insert bad organ music now) Rachel and Lee anticipated this news and felt emotionally prepared..but there was more! Late in the week of relief, they called her again (other Doctors, but still one of 'them'), "Rachel's blood is saturated with bacteria, report to the hospital STAT." After enjoying a restful Labor Day weekend in the comforts of the hospital, Rachel and Lee broke out (check out, same difference), but not before they dealt with..("dom, dom, dom, dommmmm")..the catheter. This is where we join the duo, this week.
Well, the current last page to this saga, is a new catheter. Turns out there was staph infection, but not the most horrible kind. (YAY!) I'm on antibiotics and cath #3 was removed before I left the hospital on Tuesday. If you glance back to January post, you'll note my 'Ode to a Permacath' which was written while preparing to remove #2, and install #3. I reposted this on Facebook, with a few minor tweaks reflecting the introduction of #4. I digress....
Today, the lovely and talented permacath #4 was installed by the fine Radiological team that I've come to know and trust over the past year and a half. Nice catching up with everyone over an IV of happy juice and blue sterile pads. All went well! Immediately after, we joined the equally talented pheresis team, for a plasma treatment. Symptoms are rearing their nasty head, since I'd only had 1 treatment this week.
Tonight and this weekend, I rest. My body is sore, my eyes are crossed and my speech is slow...but...all is well because there is (Gateway!) church, there is (Broncos!) football, and there is (cold!) beer. I AM BLESSED!
Tune in next week, for more exciting adventures :)
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Smile because you can!
Life is such an amazing adventure! One day you're cruising along with certain expectations, a planned route, and plenty of gas in the tank. The next, you're not sure where you are on the map and your compass fell beind that comfy seat you were in.
Smile because you can!
About Me
- Rachel
- Austin, TX
- My name is Rachel, and I have a neuromuscular disease called Myasthenia Gravis. This crazy condition was bestowed upon me in late 2008, and has the ability to render your body weak and sometimes useless unless proper treatments are administered. I've learned so much, and I feel blessed I am able to share. I'm nervous to write, but have learned that I should. Maybe you'll take something away from my nonsense.