Well hey there! (in my best southern accent) It has been a while!!
How has your new year started? Have you made an effort to savor the good and forgive the bad? I have!! My goal was to begin counting the good days, and quit focusing on my bad days. Today is day 38 or so, and its a good day! That's right, day 38 of minimal symptoms! ..and now I am knocking on wood and wincing since I've typed this out loud. Day 38.
Every night when Lee and I prepare my injection of the MS drug, I have a journal where any symptoms or issues are logged. Originally this would start off with "5 to L thigh", meaning the injection setting was at 5 and that we injected into my L thigh. You rotate 7 injection sites, and therefore track your activity....anywho...rather that starting each journal entry with the obligatory needle depth and site, I start now with "Day 38". Different perspective!! Rather than focus on the icky part of the experience, I choose to see the good.
I've taken a week to finish this blog entry. Began this on Day 33....I'm not sure why I've procrastinated, but I'm sure its because of laziness or fear. Afraid that when I say "I feel good" that it tilts the ride the other way. My prayer has been, and continues to be, "Lord, I want to show up to my wedding standing strong and seeing straight". Three weeks to go! I'm ready for day 53!!
My Myasthenia is still very present, and I can feel the symptoms when I'm tired. It's just enough to keep me sober to the fact that I must make time for rest. Plasmapheresis treatments continue taking place 3x per week. We wont tinker with this again, until after the wedding, when we will likely start a new treatment plan as well.
Thanks for checking in and asking how things are. Things are GREAT!! I have no complaints and am doing my best to enjoy each day for the joy that it is. Day 38..its a good day.
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Smile because you can!
Life is such an amazing adventure! One day you're cruising along with certain expectations, a planned route, and plenty of gas in the tank. The next, you're not sure where you are on the map and your compass fell beind that comfy seat you were in.
Smile because you can!
About Me
- Rachel
- Austin, TX
- My name is Rachel, and I have a neuromuscular disease called Myasthenia Gravis. This crazy condition was bestowed upon me in late 2008, and has the ability to render your body weak and sometimes useless unless proper treatments are administered. I've learned so much, and I feel blessed I am able to share. I'm nervous to write, but have learned that I should. Maybe you'll take something away from my nonsense.