Moderate Rant!

Welcome to December! Where does the time go? Dad always said the older you get, the faster time goes. I believe him!

The past 2 weeks have felt like they've both flown and crept by. Just before Rituxan treatment #2, my plasma was cleaned up. Just in time for turkey! Lots to be thankful for and the last thing I wanted was a slow swallow getting in the way of my properly giving thanks for a nice turkey and its close friends: dressing, gravy, creamed onions, green beans, etc. :)

Rituxan #3 was given last week. All continues to go well with this. MG symptoms continue to hover however, and after a little choking on Wednesday, we lined up pheresis again. It has been two weeks of double vision, slow chew/swallow and issues speaking. Rituxan #4 will take place on Tuesday, and I am now scheduled for weekly plasmapheresis...again.

I'm a little tired. That's a lie. I've very tired. Sick and tired of this STUPID disease. I've been rather mad these past weeks as well! I absolutely trust that God is with me, and He will not allow me to encounter more than I can deal with, but COME ON?!?! ...ok...that felt good.

Yes, I'm fine, just sharing some honest emotion.
Yes, it could be so much worse.
Yes, I trust that it will all work out the right way, regardless...(blah, blah, blah)

...dont you just feel like that sometimes? We all know the "right" things to say and what we are supposed to express, but you must safely express the real stuff too. Really, I'm sick and tired of Myasthenia Gravis right now. I'm tired of feeling like a guinea pig, and I'm mad about how MG has changed my life. There. I said it. ...ok...thats enough...I feel better now, thanks for listening.

Wheww...I'm now laughing as I type this. I should get coffee now...