Today, I am frustrated. My eyes are getting weak, and my speech has already began to fade. Yeppers, late last week, and right on schedule, the dang MG symptoms started to surface. Was this expected? Of course. Did I hope it wouldn't happen? YOU BET!
I didn't really get my hopes up for a 1-shot miracle cure from the first dose of Rituxan, but by golly, this gal was holding out a little hope. What's next? What do you do? How do you avoid choking on Thanksgiving Turkey???? ...now you understand my priority! :)
Considering my appetite these days (thanks steroids!), I want to eat all the turkey I can! The wonderful team of nurses are working with me to do a plasmapheresis treatment tomorrow, so that we get this in before the 2nd Rituxan treatment on Tuesday. Oh the juggling act! Thank God for these amazing people, who know me and want to help.
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Smile because you can!
Life is such an amazing adventure! One day you're cruising along with certain expectations, a planned route, and plenty of gas in the tank. The next, you're not sure where you are on the map and your compass fell beind that comfy seat you were in.
Smile because you can!
About Me
- Rachel
- Austin, TX
- My name is Rachel, and I have a neuromuscular disease called Myasthenia Gravis. This crazy condition was bestowed upon me in late 2008, and has the ability to render your body weak and sometimes useless unless proper treatments are administered. I've learned so much, and I feel blessed I am able to share. I'm nervous to write, but have learned that I should. Maybe you'll take something away from my nonsense.