Tuesday, November 15, 2011

One down, three to go.

That didn't hurt at all! Day 1 of Rituxan treatment, and all is well. What did I expect? I dont know, nothing, everything, something...but calm were the winds. It has been roughly a year since we began talks about this drug, for the Myasthenia Gravis, and finally the day arrives.

I've had mixed emotions about it all really. Super glad that we are able to try this drug, especially after hearing so many positive reviews from other Myasthenics who have had success. A bit nervous that we will find a dead end on this road as well. It feels like a routine anymore, that we try something new, get excited about possible results, only to learn that the results are minimal, if at all present. Hopeful that this treatment plan will teach us something new and that this may be a great step away from the only thing that has worked - plasmapheresis. Scared about the risk for other issues, although those risks are small. Curious, I am a walking science project, and I'm excited to see how the MG and MS will respond to a 1-shot wonder drug. Really two birds with one stone? Skeptic, see 'nervous' above. Trusting that no matter what comes from this experience, that good will shine through, if not for our walk, for the journey someone else is on.

Today, I sat amongst people taking drugs to save their lives. Our infusion was simply intended to try and improve whats already good. I have no complaints. The range of emotions is wild and a bit exhausting, but I'm blessed to experience each and every one of these crazy emotions, because it means I can still feel.

Treatment 1 of 4 is in the books. We'll tackle this again next week, for treatment #2. I expect next week will bring on other emotions and curiosities. In the mean time, I'm just sip my sweet tea.