Treatment six of six...will this really be the last one? I'm afraid to get my hopes up, but this is the theory. Today is the last of the scheduled pheresis treatments and Tuesday we begin the new drug, Rituxan. Lots of positive feedback on this drug, from those like me. Yep, there are others out there, like me. Myasthenics who do not respond to typical treatments. I'll admit, my mind expects we are a hardy bunch, who must be stubborn as all get out!
I dont have much to say today...maybe thats why I'm willing to type. I do get a little sad to think about leaving my nurses and doctors again...this is my family too. Suppose we could find better reasons to gather.
skip to main |
skip to sidebar
Smile because you can!
Life is such an amazing adventure! One day you're cruising along with certain expectations, a planned route, and plenty of gas in the tank. The next, you're not sure where you are on the map and your compass fell beind that comfy seat you were in.
Smile because you can!
About Me
- Rachel
- Austin, TX
- My name is Rachel, and I have a neuromuscular disease called Myasthenia Gravis. This crazy condition was bestowed upon me in late 2008, and has the ability to render your body weak and sometimes useless unless proper treatments are administered. I've learned so much, and I feel blessed I am able to share. I'm nervous to write, but have learned that I should. Maybe you'll take something away from my nonsense.