I really enjoyed church this past Sunday. We'd missed the prior week due to our trip to Denver..which was beautiful! A dear friend of mine was married, and the simple love was awesome. Sunday's message was about making the most of life's ordeals. A quote the preacher incorporated was borrowed from Outward Bound (excellent program), "If you can't get around it, get into it." This really rang true for me!
Honestly, I've wanted to get around MG since it met me. I felt my life was on the right track, and that my next chapter of fun was just beginning, with the move to Austin just over 2 years ago. ..then wham!..Rachel, meet MG. Hearing the story shared this Sunday, and the quote above, made me smile big. I feel like we've done just this. Can't get around MG at all, can't even dosey doe past it...so we've just gotten into it. What does that mean in your world?
I'm mine..we've become actively involved with our MG support group, helping raise awareness and networking. (For those wearing our awareness bracelets, THANK YOU!!) The local MDA chapter now has a real face for MG, and we're part of their team too. People around us now know more about this disease than they ever wanted to know (because I wont shut up), and this knowledge applies to other autoimmune diseases. This crazy disease has changed my life's pace, taught me a LOT about insurance and hospitals and doctors and blood levels and drug interactions and ...blah, blah, blah....it goes on and on.
You have the same things in your world, right? It might be a speeding ticket, or a child's report card with slipping grades, or an illness, or whatever...We all have life events that we can grow from. This doesn't mean we forget what may have happened, but it does mean we learn from the situation, we can grow, we can share our experience with others and support them through similar events...we can do so much.
Our emotions are real, and shouldn't be denied or ignored. I'm really not a big fan of MG...I would say I resent having it. I really dislike what it has forced me to do! I really don't like the catheter in my chest or the stupid machine that my life is centered around these days. These emotions are real and I own them. I also respect the fact that I am here. Right here. This is mine...and that's ok. I cant run from it, can't hide, can't make it go away, and cant ignore it.
I can't get around it...so I have to get into it!
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Smile because you can!
Life is such an amazing adventure! One day you're cruising along with certain expectations, a planned route, and plenty of gas in the tank. The next, you're not sure where you are on the map and your compass fell beind that comfy seat you were in.
Smile because you can!
About Me
- Rachel
- Austin, TX
- My name is Rachel, and I have a neuromuscular disease called Myasthenia Gravis. This crazy condition was bestowed upon me in late 2008, and has the ability to render your body weak and sometimes useless unless proper treatments are administered. I've learned so much, and I feel blessed I am able to share. I'm nervous to write, but have learned that I should. Maybe you'll take something away from my nonsense.