Well, dang it all!!! I've been so frustrated this past week, because the symptoms caught up to me again. No, I did nothing crazy and didn't over extend myself (Mom :D). I'm pretty sure than when the Prograf catches up, this shouldn't happen, but it appears the symptom flare ups are related somehow to my menstrual cycle. I can't believe I just typed that word out loud..but we're all adults, right? I've chatted with several women around the globe via message boards, and it turns out their MG symptoms also flare around their cycle too! Wow, didn't think about it before, but suppose it makes sense. Symptoms flare with stress to the body...I'm not saying this 'causes' MG or the symptoms, I'm suggesting that symptoms are magnified during this natural wonder.
Blah, blah, blah...anyway... This past week, my speech has been poor, my body weak, my eyes crossed and my swallow very slow. Today is day 1 of feeling better! Yeppers, I was excited to wake up and swallow water with out issue! Then take pills without problem, and the next thing on my radar was a McGridddle from McD's. I couldnt' help myself...its time to eat!!!
Over the past week, the small amount of weight I'd been so excited to put on, fell off...."so long, farewell...la de dah de dah." We'll see how much I can put on in 2 weeks and then see if symptoms take over again, for 2 weeks after that. UG.... One month in to the Prograf..we definitely have a good baseline to start from...bring it on!!
Happy Birthday to Aunt Al today!! Truly and angel on this earth, Aunt Al carries so much, for so many, and so many of us have no idea. I'm proud to know you and call ya my Aunt Al!
Ok, I'm working on the second half of this McGriddle...more later....
skip to main |
skip to sidebar
Smile because you can!
Life is such an amazing adventure! One day you're cruising along with certain expectations, a planned route, and plenty of gas in the tank. The next, you're not sure where you are on the map and your compass fell beind that comfy seat you were in.
Smile because you can!
About Me
- Rachel
- Austin, TX
- My name is Rachel, and I have a neuromuscular disease called Myasthenia Gravis. This crazy condition was bestowed upon me in late 2008, and has the ability to render your body weak and sometimes useless unless proper treatments are administered. I've learned so much, and I feel blessed I am able to share. I'm nervous to write, but have learned that I should. Maybe you'll take something away from my nonsense.