The anticipated lab results from the spinal tap, came back this week. Seems that my test are much the same as they were in late 2008. The spinal fluids still indicate elevated marks on the MS panel and on one other test. All of this remains a foreign language to me.
The element that has truly changed is the new spot on my brain. This was not present in my last MRI (late 2008). Couple this with the odd visual disturbance experienced in mid-June, and it sounds like the makings of MS. Evidently, there is not an easy yes/no test available to determine if you do/don't have this condition. So we wait.
What?! Wait, why wait, why not medicate now to prevent/slow development of more spots? Our plan is to do another MRI in 6 months to see if any additional spots show up. In speaking with others impacted by this disease (and more clearly diagnosed), it seems that someone may have a flare/episode once, and never experience that again. Others have more consistent symptoms. Rather than adding another medication to the routine, we'll relax and wait to see if something more happens. It could be that I'll have one spot only and nothing more occur, other than MG symptoms. Who knows...
It is common for those with autoimmune conditions, to develop other autoimmune conditions as well. The combination of MG & MS is rare, but it does happen. The two conditions are very similar. MG and MS have very similar symptoms and sometimes have the same treatment plans. Maybe I've had both for a while, since the labs are consistent. Maybe I really have one and not the other, but my positive MG test and brain spots make that unlikely. Maybe I have a new form of *awesomeness* called MMGS, that only the most super cool people on the planet can have! ...yeah, I like that version best. Lets go with it
Time for the weekend, enjoy all!
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Smile because you can!
Life is such an amazing adventure! One day you're cruising along with certain expectations, a planned route, and plenty of gas in the tank. The next, you're not sure where you are on the map and your compass fell beind that comfy seat you were in.
Smile because you can!
About Me
- Rachel
- Austin, TX
- My name is Rachel, and I have a neuromuscular disease called Myasthenia Gravis. This crazy condition was bestowed upon me in late 2008, and has the ability to render your body weak and sometimes useless unless proper treatments are administered. I've learned so much, and I feel blessed I am able to share. I'm nervous to write, but have learned that I should. Maybe you'll take something away from my nonsense.