One week later, and I'm in such a better space. The symptoms have pretty much passed, so it feels like we are back on a 1 week 'bad week' cycle. Like I've said before, every time I feel like the life cycle of this stupid disease is making sense (to me), the rug pull out from under me...so I'll just sit still and not worry with trying to control it. My eyes are still crossing at the end of the day, but with rest, that's tolerable.
Today is Saturday, and we're in Georgia. My home! We arrived late Thursday, and will leave early Tuesday. Travel is always tough with MG, but thanks to a very protective family, I get to relax and be worried over. Yesterday we learned my Aunt Dot passed away, and I am so grateful we can be here with my Dad at this time. What a blessing that she is no longer in pain, and that her family was with her.
Tonight, dinner with my sisters and their men, Tomorrow church with the parents, and Monday my sisters and mom and I are going to try on wedding dresses!! Wahoooo...I prayed last week that my symptoms would pass, so that I could really enjoy this trip and all that would be taking place. So YAY for lack of symptoms right now, for fresh vegetables out of the garden, and for naps. Speaking of...its time to rest.
Happy 4th of July weekend all!
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Smile because you can!
Life is such an amazing adventure! One day you're cruising along with certain expectations, a planned route, and plenty of gas in the tank. The next, you're not sure where you are on the map and your compass fell beind that comfy seat you were in.
Smile because you can!
About Me
- Rachel
- Austin, TX
- My name is Rachel, and I have a neuromuscular disease called Myasthenia Gravis. This crazy condition was bestowed upon me in late 2008, and has the ability to render your body weak and sometimes useless unless proper treatments are administered. I've learned so much, and I feel blessed I am able to share. I'm nervous to write, but have learned that I should. Maybe you'll take something away from my nonsense.